After being born for a while, the parents discovered that both of their daughters had a strange disease that caused their heads and necks to bend, their health was weak, causing many people to see them mocking them as “alien” pure.
In the past few days, on many forums, they have posted about the case of 2 little sisters Hoang Thi Bach Tuyet (7 years old) and Hoang Thi Yen Nhi (4 years old) both residing in Lang Toi village (Yen Nguen commune – Chiem district, Hoa – Tuyet Quang province) suffering from scleroderma, which makes both babies look different from normal children.
Having the disease makes both sisters’ heads always tilted, hair does not grow, it is difficult to walk and stand, as well as eyes widening to look at others, causing many people pity.
Even many people who look at the two sisters Tuyet – Nhi are likened to aliens, making anyone feel pity. Even more pitiful when knowing the family’s situation with many economic difficulties, the father and mother of two children had to put all their money to take their children everywhere, but the disease still did not get better.
Talking to us, Mr. Hoang Van Toan (born in 1986), who is a father of 2 children, couldn’t help but feel sorry for himself: “My wife and I got married in 2009 and in 2011 gave birth to a baby Tuyet. Still developing like normal children. However, later discovered that he had strange symptoms, so the family took him to the doctor and the doctors said he had scleroderma.”
The family said that the intelligence of Tuyet and Nhi were normal, but their heads were always tilted.
Knowing his son’s illness, Mr. Toan and his wife, Dinh Thi Si (born in 1985), took their child everywhere for treatment, but the disease did not improve.
Mr. Toan also said that in 2013, the family continued to give birth to the second child, Hoang Thi Yen Nhi. Nhi continued to suffer from the same disease as her older sister.
“When the children were born, they were normal, but suddenly discovered the disease after a while. We didn’t know what to do, so we just tried to work and earn money to feed our children as well as take them to medical treatment. Although the children have had the disease for many years, the disease has not improved until now,” Mr Toan said sadly.
Talking more about her child’s illness, Ms. Dinh Thi Si sadly said: “The two children still have normal intellectual development, but due to illness, their limbs are not strong, or sick, or sick. The head is always tilted to one side.”
Can’t go to school due to poor health.
At present, the family of Mr. Toan and Ms. Si have moved to live separately, plus the two daughters are sick and in poor health, so the husband and wife often have to take turns to take care of their children, and then take care of their children’s money for medical treatment. life becomes more and more difficult.
However, that is not why Mr. Toan and Ms. Si do not love their two little daughters. They said: “Even though the child is sick, we are always devoted to him, whenever we have a little capital, a little money we can save, we will bring him to examine, treat and pray for his illness to be relieved.”
Mr. Toan also said: “Due to my two sick children, I just stay at home to work in the fields like everyone else does, sometimes I go to work as a helper to earn extra money in the fields to take care of the children. My wife has to go to work as a laborer. The staff is also busy from morning to night, so they don’t have the conditions to take care of the children.”
Si said, both daughters are obedient, eat well, and sleep well.
Speaking sadly, Ms. Si and Mr. Toan said that the family’s fate was extremely long and difficult when both children had the same disease. Seeing the children in the village having fun, running and jumping as well as going to school made many times the couple burst into tears.
Their bodies are sick, so they are not like normal children.
Ms. Si confessed: “Baby Tuyet was only allowed to finish preschool at the age of 5, then couldn’t continue going to school because her health did not allow it, plus it was difficult to move, so the family decided to let her drop out of school. As of now, Nhi can’t even go to preschool.”
Currently, Tuyet and Nhi want to be cured.
Talking to us, Mr. Tran Huu Dong (Secretary of the People’s Committee of Yen Nguyen commune – Chiem Hoa district) said: “Baby Tuyet and Baby Nhi have been ill since childhood. Until now, the disease has not improved, so it is very difficult for parents to cope with the disease. the care, concern and treatment of two children.”
Mr. Dong also added: “It is possible that Tuyet and Nhi have inherited diseases from Mr. Toan’s younger sister. Currently, Mr. Toan is in the locality working as a farm assistant as well as a helper, while Si Si works as a worker. family life. The family is in a lot of trouble.”
