Ekaterina Mezenova, a 24-year-old Russian model and influencer, has built a successful career in the fashion world, becoming the face of numerous clothing brands. With over 800,000 followers on her Instagram profile, she regularly shares content about her family and professional life with her dedicated audience.
However, for the first time, Ekaterina decided to post images that unveil her one-year-old son’s rare skin condition, a condition he has had since birth, for a year and four months.
The model shared that Max’s birth day was clouded by a rare diagnosis that left her family bewildered. The delivery room was filled with doctors, geneticists, nurses, all discussing the presence of a birthmark-like lesion that covered a significant part of the baby’s body.
It was a mark that nearly spanned the entire surface of his skin, a rare condition known as a nevus. This disease can potentially lead to oncological complications, as any physical or chemical variations in the body, such as hormonal growth, can promote the development of skin cancer.
Ekaterina decided to consult a specialist who informed her that it was impossible to surgically remove the entire birthmark from Max. However, he recommended a treatment that lasts between 6 and 7 months, which could reduce the risks of complications.
The dilemma for the family regarding this medical treatment is its high cost, amounting to $450,000.
In light of this situation, where they lack the necessary resources, the model decided to showcase her son to raise funds and pay for the treatment. Additionally, she aims to raise awareness about this rare condition.
Despite receiving a wave of negative comments for exposing her child since she posted the images, Ekaterina has found solace in those who have expressed their support. She is pleased that, since she spoke out, many parents have reached out to her with inquiries about their child’s condition because they are facing similar situations.
Her post has garnered more than 900,000 reactions and thousands of comments. Many media outlets around the world have picked up on her message.
The model pledged to gradually dedicate herself to answering questions about Max’s diagnosis. Share this news on your social media to bring visibility to this condition.
